Moffitt Cancer Center is a national leader in the treatment and management of neurofibromatosis, a genetic condition that causes small tumors to grow in the brain, nerve cells, spinal cord and other areas of the body. While these tumors are often benign (noncancerous), they may cause issues like vision and hearing difficulties that warrant surgical treatment. Some patients with neurofibromatosis may also develop malignant (cancerous) peripheral nerve sheath tumors, a rare growth that can occur in a nerve’s protective lining.
At Moffitt, we believe that patient education is a key component of a positive treatment experience. The best way to combat anxiety or concerns about neurofibromatosis and its treatment process is to find answers to your questions and stay informed. With the right help, you’ll be able to make confident and informed decisions regarding the management or treatment of your neurofibromatosis.
If you’ve been diagnosed with neurofibromatosis or a malignant peripheral nerve sheath tumor, you are encouraged to submit a new patient registration form online or contact Moffitt at 1-888-663-3488 to consult with a physician about your concerns and treatment options. Or, you can browse through these helpful articles to find answers to some of the most common questions we receive: