Study Title

Family Building Decisions Among Adolescent Young Adults (AYAs) Patients with Inherited Cancer Risk and Their Partner Dyads

Summary

Objective

Aim 1: To examine information needs and preferences of AYA cancer patients and their partners regarding their carrier status in relation to decision-making about future family building. Approach: This aim will be achieved by conducting semi-structured, individual interviews with 12-15 patients as well as their partners within 2-4 weeks of the patient receiving genetic test results Aim 2: To investigate couples decision-making process regarding family building (including fertility preservation and assisted reproductive technologies, ART). Approach: To achieve this aim, AYA cancer patients and their partners will participate in an unmoderated recorded discussion task a structured conversation designed to uncover preferences for family building and decision making. Following their completion of the discussion task, AYA cancer patients and their partners will participate in semi-structured, dyadic interviews to discuss their decision-making process over time Aim 3: To develop a QPL to facilitate communication between patients and their partners about family building decisions. Approach: This aim will be achieved by combining the results from Aim 1 and Aim 2. Once complete, our study teams psychoeducational intervention will be piloted in a future iteration of this study.