Clinical Trials Search
Clinical Trial 18982
Study Type: Other
Phase of Study: NA
- Heather Jim
The Roles of Education and Patient Engagement to Improve Symptom Management and the Quality of Life for Patients with Relapsed/Refractory Chronic Lymphocytic Leukemia
This research study is looking at the effectiveness, acceptability, and usability of web based technology to report treatment side effects and receive care instructions.
4.1 Primary Study Aims: 4.1.1. To describe patients' perception of the overall effectiveness, acceptability, and usability of bi- directional web based technology to self-report symptom prevalence and severity and receive management recommendations. 4.1.2 To describe the longitudinal symptom experiences of patients across CLL treatments in the relapsed/refractory setting by collecting symptom burden (prevalence and severity), psychosocial distress, and quality of life. 4.2 Secondary Study Aims: 4.2.1. To understand the patterns of change in provider decision making over time in the treatment of patients with relapsed/refractory CLL. 4.2.2 To understand causes for unanticipated office and ED visits and hospitalizations with associated patient-reported chief complaints. Data will be analyzed across the entire patient sample and correlated with treatment selection and fit-frailty scores.