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The Complexity of Family-Centered Care: Identifying Support and Decision-Making Needs and Expectations of Young Adult Cancer Patients, Partner and Parent Caregivers
The purpose of this study is to better understand how families, who receive an adolescent or young adult (AYA) cancer diagnosis expect to interact with each other. Using this information, investigators hope to identify strategies that lead to more successful family decision-making, more effective patient support, and, ultimately, better patient outcomes. The information gathered from this research will be used to develop tailored, targeted interventions to assist providers in managing AYA patient family dynamics.
1. Identify and compare specific expectations of young adult patient social support needs and caregiver support provision from stakeholders in each role (patient, parent, partner). 2. Identify and compare specific expectations of caregiver involvement in decision making from stakeholders in each role (patient, parent, partner). 3. Identify needs for conflict resolution among young adult cancer patient families regarding providing support and making decisions.