Clinical Trial 18738

Cancer Type: Genitourinary
Interventions:

Study Type: Other
Phase of Study: NA
Investigators:

  • Scott Gilbert

Overview

Study Title

Developing a Patient- and Caregiver-Centered Psycho-Educational Tool to Support Recovery after Cystectomy

Summary

The purpose of this study is to develop and test educational resources that may help people with bladder cancer to be better prepared for treatment and recovery.

Objective

Pilot Aim 1. Adapt a psychoeducational intervention to the needs and concerns of bladder cancer patients. Employing a user-centered design process, we will develop a multimedia educational tool (HISE) focused on patient-centered concerns and needs related to preparing for and recovering from cystectomy. Pilot Aim 2. Evaluate user acceptance of the adapted content and format among a group of cystectomy patients. The adapted psychoeducational intervention will be reviewed with bladder cancer patients previously treated with cystectomy to evaluate its acceptability and usability. Feedback and insights gained during this process will be used to revise and refine HISE.

Inclusion Criteria

  • 18 years of age or older
  • Able to read and speak English
  • Have been treated with cystectomy (bladder removal) and urinary diversion at Moffitt Cancer Center (MCC) within the last 5 years, or are a caregiver of a cystectomy patient
  • No documented or observed psychiatric or neurological disorder that would interfere with study participation
  • Able to provide informed consent and attend study sessions

  • Exclusion Criteria

  • Do not meet Inclusion Criteria listed