The Patient & Family Advisory Program was established in 2005 to bring the patient and family perspective into everything we do at Moffitt. The components of the program include:
- A Patient & Family Council composed of patient and family advisors, as well as clinicians and administrators
- Committees of the Council
- Patient & Family Advisors integrated into Moffitt Committees
- A Patient & Family Newsletter, PARTNERS, which is published quarterly
- Hospitality Coffee Hours for patients and family members held three times a month.
Patient- and family-centered care is a culture at Moffitt. Patients, family members, faculty and staff participate in this initiative.
The Patient & Family Advisory Program is dedicated to strengthening collaboration between patients and family members and the health care team so as to enhance the Cancer Center’s ability to deliver the highest standard of safe, comprehensive and compassionate health care.
The Patient & Family Advisory Council
The Patient and Family Advisory Council includes 15 patients and family members, who serve terms of one or two years each. The Council is facilitated by patient or family co-chairs who serve two-year terms. The council also includes key Moffitt Cancer Center administrators and staff members, including representation from clinic administration, hospital administration, patient support services, nursing and facilities.
The Council serves as a "voice” for patients who have received cancer treatment at Moffitt and their family members. Members work alongside doctors, nurses, and other health care providers to ensure that the highest level of care is delivered. This is accomplished by four goals:
- Promoting integration
- Enhancing communication
- Improving navigation through the system
- Improving patient safety and delivery of care
In Moffitt’s Patient & Family Advisory Program, patient and family advisors work side-by-side with clinicians and administrators to:
- Provide information about needs and concerns
- Work with staff to make changes that affect patients and families
- Participate in the design of patient care areas
- Assist in the planning of new patient-related programs
- Serve as a resource on a wide variety of issues, services and policies
The program was modeled after the adult and pediatric councils at the Dana-Farber/Brigham and Women's Cancer Center in Boston.
Patient- and Family-Centered Care
The Patient & Family Advisory Program is based on the principles of Patient- and Family-Centered Care, which is an approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among patients, families and health care providers. It is founded on the understanding that the family plays a vital role in ensuring the health and well-being of patients of all ages. In Patient- and Family-Centered Care, patients and families define their “family” and determine how they will participate in care and decision-making. The four principles of Patient- and Family-Centered Care are:
- Dignity & Respect
Health care providers listen to and honor patient and family perspectives and choices. Patient and family knowledge, values, beliefs and cultural backgrounds are incorporated into care planning and decision-making.
Health care providers communicate and share complete and unbiased information with patients and families in ways that are affirming and useful. Patients and families receive timely, complete, accurate information in order to effectively participate in care and decision-making.
Patients and families are encouraged and supported in participating in care and decision-making at the level they choose.
Patients, families and providers collaborate in policy and program development, implementation and assessment; in health care facility design; and in professional education, as well as in the delivery of care.
*Reprinted with the permission of the Institute for Family-Centered Care. To find out more about the Institute for Family Centered Care, please visit www.familycenteredcare.org.
How to Get Involved
For further information about the Patient & Family Advisory Council Program, contact Kim Buettner, program coordinator, at 813-745-1390, or send an email to firstname.lastname@example.org.